Parents, family members, health workers and people with Down’s Syndrome have the knowledge and attitudes needed to understand health issues, have access to professional services and equipment, and are engaged in taking proactive measures to stay healthy and to resolve problems as they arise
What we have done so far:
Heart: Children and adults with DS never have gone heart check once when they were born, and if they didn’t have congenital heart disease at birth, they never went back to check their heart or even those who have CHD did not go on annual checks. Only 3 of them out of 80 wear glasses, and even these children did not check their eyes regularly.
- 85 children did the Ultrasound of the heart
- Out of them 14 children have Congenital heart disease
- So far, one surgery was done in Moscow, 1 in Khujand and 1 soon will be done in Tashkent
- For 2 children it is already too late to do the operation
Some parents refuse to do heart surgery for their children (because of the fear that their child will not come out alive after a surgery.